Joseph update…
Hello Family,
It was great being with you all on Easter Sunday! We only regret that Joseph was having such a tough day… Today Dr. Iskandar called me back, and we discussed Sunday’s happenings and Joseph’s current status. Chris and I wanted to share the details with you all, since you were also a part of Sunday.
Dr. Iskandar said that the shunt tap which was performed on Sunday was a “very good shunt tap and showed that Joseph’s shunt is functioning well.” He went on to say that we will continue to wait and see what happens (a “game” we’re getting very used to). There is a possibility that Joseph has a condition known as “Slit Ventricle Syndrome.” The brain actually collapses around the shunt catheter so the pressure starts to build creating a headache. Since Joseph’s brain is non-compliant (that means his brain ventricles do not expand when the pressure increases), his brain cannot handle the increase in pressure. Often times a person like this will vomit creating just enough expansion in the brain ventricle to clear the shunt and start it working again. It’s possible that Joseph lying flat on the way to Madison also allowed this to happen…explaining why the headaches finally stopped.
Right now Joseph is doing great! Monday morning he was his normal self! So we will continue to walk this faith journey and pray that researchers find the cure for Hydrocephalus soon!!! God is in control, and He has a plan that is bigger than any of us can begin to comprehend. Thanks to each of you for your love, concern and continue prayers for Joseph and our family. We are BLESSED to have you all as part of our support system. To God be the glory!
God’s blessings and our love, Angela